Toward
Fair Cures: Integrating the Benefits of Diversity in
the California Stem Cell Research Act was a first-of-its-kind
conference on minority health disparities and stem cell research.
The Greenlining
Institute, a multi-ethnic public policy, research and advocacy
group, hosted the October 14 event in order to facilitate a dialogue
on how all Californians, particularly the state's diverse "minority
majority" communities, can share in any benefits of the state's
$3 billion stem cell research program.
CGS staff members
Sujatha Jesudason and Patricia Berne were among an impressive roster
of speakers from community groups, academia, and the sciences. The
three panels addressed topics, including institutional barriers
to diversity, affordability of any treatments developed by the stem
cell program, community reinvestment, safeguarding women in stem
cell research, and the politics of disability.
The agency at
the center of much of the attention—the California
Institute for Regenerative Medicine—was represented by
Scientific Review Officer Gil Sambrano and a recorded video message
from CIRM President Zach Hall.
The conference
was co-sponsored by the UC Berkeley's Science,
Technology and Society Center and the Children's
Hospital Oakland Research Institute, where it was held.
In its conference
report [PDF], Greenlining listed six recommendations from the event:
"Set clear and measure goals for increasing diversity"
"Increase community outreach and education"
"Institute a community reinvestment model"
"Direct resources to pipeline programs"
"Protect women egg donors"
"Build partnerships"
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