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About Biopolitics, Parties, Pundits & Human Biotechnology


Policy decisions about human biotechnologies have typically been debated among elite commissions and experts. But controversy is increasingly spilling over into mainstream news media and political debates.

This trend has been most notable in the United States, with the emergence of human embryonic stem cell research as a political issue. Stem cell debates at the policy level have made this discussion far more visible to the public.

The Bush Administration's restrictions on federal funding for human embryonic stem cell research elevated the issue to the front pages of newspapers. Shortly after its announcement in 2001, partisan battle lines were drawn in ways that mirror the abortion rights divide.

Republicans hoped that opposition to research that destroys embryos would increase support among their party's religious conservative base. Democrats countered by assembling a coalition of patient advocates, biomedical researchers, and biotechnology entrepreneurs and appealed to moderate swing voters and Republicans who they believed would be swayed by promises of cures.

There were some notable exceptions to this partisan line-up. Some conservatives support embryonic stem cell research; some liberals and progressives who support the research in principle criticize aspects of its conduct and regulation. Unfortunately, the polarized debate has frequently distorted facts while obscuring a range of important social issues unrelated to the moral status of embryos.



Setting the record straightby Martin H. JohnsonReproductive BioMedicine Online EditorialDecember 1st, 2016A report aiming to set the record straight after some shoddy scientific journalism on mitochondrial transfer.
“3-Parent Baby” Procedure Faces New Hurdleby Karen WeintraubScientific AmericanNovember 30th, 2016Mitochondrial disease can somehow creep back in, even if a mother’s mitochondria are virtually eliminated in an attempt to block inherited illnesses.
Human Gene Editing: A Timeline of CRISPR Cover StoriesWith recent gene editing tools, a number of high-profile media are featuring CRISPR on their covers and front pages. We gather highlights since early 2015, along with opinion polls, TV shows, and editorial board statements.
What’s behind those billion-dollar biotech deals? Often, a whole lot of hypeby Damian GardeSTATNovember 28th, 2016New deals paid out with “biobucks” which only pay out when an experimental drug hits various milestones along the path to commercialization.
'No solid evidence' for IVF add-on successby Deborah CohenBBC PanoramaNovember 28th, 2016Year-long Oxford study finds that nearly all costly add-on treatments offered by UK fertility clinics are unreliable, misleading, and risky.
Should We Rewrite the Human Genome?by Alex HardingXconomyNovember 28th, 2016Conversations of such endeavors raise ethical concerns of oversight in its research and medical applications.
Review of Blame: A Novelby Abby Lippman, Biopolitical Times guest contributorNovember 28th, 2016Blame is especially important for those unfamiliar with the range of ethical, social, legal, and political issues raised by applications of what is learned in a lab. While a work of fiction, it is definitely not science-fiction
Cambodia charges Australian nurse for running surrogacy clinicby Prak Chan ThulReutersNovember 21st, 2016As many South Asian countries take steps to clamp down on practices of commercial surrogacy tourism, stakeholders like Davis-Charles are confronted with charges.
Obama’s Science Advisors Are Worried About Future CRISPR Terrorismby Daniel OberhausVICE MotherboardNovember 21st, 2016PCAST warn that under current legislation, there is no room for rapid response to threats and misuse, recommending improved biosurveillance as a solution.
Why the Deaf Community Fears President Trumpby Sara NovicVICENovember 18th, 2016The new administration may potentially resurface the eugenics movement and erase the public safety net that has taken decades to build.
The Sudden, Inevitable Rewiring of the American Leftby Andrew BurmonInverseNovember 18th, 2016It's not clear which direction the Trump administration will be pushed by conservative evangelicals like Mike Pence and technophile wildcards like Peter Thiel.
Who Will Advise Trump on Science?by Ed YongThe AtlanticNovember 18th, 2016For 40 years, the Office of Science & Technology Policy has closely counseled the president, but its role in the new administration is unclear.
The Field of Synthetic Biology Runs on Speculative Fictionby Jason KoeblerVICE MotherboardNovember 18th, 2016As technology advances and draws us closer to unknown dimensions that may parallel sci-fi worlds, conversations must be inclusive of voices beyond science and industry.
Palo Alto committee debates whether Jordan school should keep its eugenicist namesakeby Jacqueline LeeSan Jose Mercury NewsNovember 17th, 2016David Starr Jordan, Stanford University’s first president, believed the human race could be improved through selective reproduction, including forced sterilization.
With Fertility Rate in China Low, Some Press to Legalize Births Outside Marriageby Didi Kirsten TatlowThe New York TimesNovember 17th, 2016Civil society groups are calling for greater reproductive freedom for single women, which would also affect lesbians.
Abortion-By-Mail Study Outrages Opponentsby Phil GalewitzKQED California HealthlineNovember 16th, 2016Gynuity Health Projects pilots a study in Hawaii, New York, Oregon, and Washington that uses telemedicine as an alternative for declining access.
DNA-editing breakthrough could fix 'broken genes' in the brain, delay ageing and cure incurable diseasesby Ian JohnstonThe Independent [UK]November 16th, 2016The technique allows DNA changes that have not previously been possible, modifying the genes of non-dividing cells in a living animal.
Seeding Doubt: How Self-Appointed Guardians of “Sound Science” Tip the Scales Toward Industryby Liza GrossThe InterceptNovember 15th, 2016Sense About Science has downplayed concerns about industry-funded research and promoted science that favors private interests over public health.
CRISPR gene-editing tested in a person for the first timeby David CyranoskiNature NewsNovember 15th, 2016A clinical trial in China used cells edited with CRISPR-Cas9 to treat a patient with lung cancer. Spectators anticipate a biomedical duel with US.
Disgraced stem-cell entrepreneur under fresh investigationby Alison AbbottNature NewsNovember 14th, 2016Davide Vannoni was barred from offering a controversial stem-cell therapy in Italy in 2015, but may be continuing his work abroad.
Increase in IVF complications raises concerns over use of fertility drugsby Hannah DevlinThe Guardian [US]November 13th, 2016Stronger drugs used to harvest more eggs could also be linked to a 40% increase in cases of ovarian hyperstimulation syndrome.
ACCC puts IVF clinics 'on notice' over misleading success rate claimsby Madeleine MorrisABC [Australia]November 13th, 2016Some major Australian fertility clinics changed confusing marketing messages on their websites after a consumer group's investigation documented their misleading claims.
Stem Cell Clinics Promise Miracle Cures, but at What Cost to Patients?by Philip PerryBig ThinkNovember 13th, 2016Taking advantage of a regulatory loophole, hundreds of clinics with virtually no oversight are offering stem cell therapies which are virtually untested, and make unsubstantiated claims about helping patients overcome disease.
Stem Cell Researchers Anxious About Trump Presidencyby Gillian MohneyABC NewsNovember 11th, 2016Mike Pence opposes federal funding for embryonic stem cell research. But reintroducing a funding ban "would be like putting a genie back in the bottle."
San Diego Scientists Help Develop New Twist On In Vitro Fertilizationby David WagnerKPBSNovember 10th, 2016The patent holder for a related "3-person IVF" technique reports new work with "polar body genome transfer." Some experts say none of these approaches have been proven safe.
I’m a disabled American. Trump’s policies will be a disaster for people like me.by Ari Ne'emanVoxNovember 9th, 2016The anticipated loss of support infrastructure that is essential to living with a disability may lead to greater solidarity from other progressive groups.
Sorry, that DNA test doesn't make you indigenousby The 180 with Jim BrownCBC RadioNovember 6th, 2016Belonging to a particular community can mean sharing beliefs, cultural practice, even official citizenship. But it's not decided by genetic material.
America’s ambivalence about race is seeping into scienceby Taunya EnglishThe Pulse, NewsworksNovember 4th, 2016"Race has been used to oppress people, ... to kill people. Does science really want to be using a concept that is so historically loaded?"
Germany's sperm bank plans leakedby Ben KnightDeutsche WelleNovember 3rd, 2016The German government is making good on its promise to the children of sperm donors by setting up a central database to make it easier for them to find their biological fathers.
Cambodia bans booming commercial surrogacy industryby AFPChannel News AsiaNovember 3rd, 2016A government edict makes Cambodia the latest country to ban commercial surrogacy after prohibitions in other parts of the globe sparked a local boom in business.
13 Urgent Science and Health Issues the Candidates Have Not Been Talking Aboutby C.U.N.Y. Graduate School of JournalismScientific AmericanNovember 3rd, 2016The prospect of genetically enhanced humans is looming, but has remained unaddressed during this election season.
Genetic test costs taxpayers $500 million a year, with little to show for itby Casey RossSTAT NewsNovember 2nd, 2016A new study shows that genetic testing can waste half a billion dollars a year, and lead to unclear results, anxiety, and more testing.
"Personalized nutrition" isn’t going to solve our diet problemsby Julia BelluzVoxNovember 2nd, 2016The trend of looking at DNA to "revolutionize" health lacks scientific backing and threatens to obscure environmental influences.
Genetics startup Genos wants to pay you for your DNA databy Sarah BuhrTech CrunchNovember 1st, 2016Company plans to pay participants for full genome sequencing, starting with exomes, to create a disease variant map.
The shifting landscape in biosocial scienceby Brett MilanoHarvard GazetteNovember 1st, 2016Dorothy Roberts' two-part Tanner Lectures examine how a profound shift in biosocial science is affecting race and social inequality.
Male birth control shot found effective, but side effects cut study shortby Susan ScuttiCNNNovember 1st, 2016Study's findings draw concern over whether contraceptive benefits outweigh the risks for men and women (which could be fatal).
Genetic testing fumbles, revealing 'dark side' of precision medicineby Sharon BegleySTATOctober 31st, 2016Inconsistency in DNA interpretation and in the algorithms used among databases, unregulated by the FDA, contributed to a fatal outcome for a 5-year-old boy.
Colin Kaepernick’s 'I Know My Rights Camp' cements his status as a cultural superhero in the black communityby Shaun KingNew York Daily News October 29th, 2016NFL player Colin Kaepernick distributed DNA ancestry tests at a "Know My Rights" youth camp in Oakland, citing their reconciliation value.
Doubts About the Promised Bounty of Genetically Modified Cropsby Danny HakimThe New York TimesOctober 29th, 2016Genetic modification in the US and Canada has not accelerated increases in crop yields or led to overall reduction in pesticide use.
Synthetic human genome project releases its draft timelineby Ike SwelitzStat NewsOctober 28th, 2016HGP-Write rebrands itself suggesting broader visions to synthesize "all sorts of...genomes, not just humans," but issues of transparency loom.
UK's national sperm bank stops recruiting donorsby Laura LeaBBCOctober 27th, 2016A joint project set up with a small government grant in response to couples turning to foreign markets for sperm yielded only seven donors.
Fruity with a hint of double helix: A startup claims to tailor wine to your DNAby Rebecca RobbinsSTAT NewsOctober 27th, 2016Sequencing giant Illumina's new app store Helix is leading the charge of linking DNA analysis to lifestyle marketing.
Are Altered Mosquitoes a Public Health Project, or a Business?by Antonio RegaladoMIT Technology ReviewOctober 27th, 2016The fight against dengue and Zika in Latin America is turning into a contest between mosquito-altering technologies, and between profits and public health.
23andMe Has Abandoned The Genetic Testing Tech Its Competition Is Banking Onby Stephanie M. LeeBuzzFeedOctober 26th, 2016Other companies are starting to sell next-generation sequencing-based tests to the public, but 23andMe has let go the team that had been working on its project.
Fatal experiments: a maverick surgeon strikes backby Nell FrizzellThe GuardianOctober 25th, 2016A new documentary looks at the six patients who died on Dr. Paolo Macchiarini’s watch. When does pioneering medicine become reckless endangerment?
Obama Brought Silicon Valley to Washingtonby Jenna WorthamThe New York TimesOctober 25th, 2016The White House South by South Lawn festival presented the U.S. as a start-up of dreamers and inventors looking to "fix" social problems with tech.
There Is No Leadership Geneby Tracy StaedterSeekerOctober 25th, 2016As genetic testing becomes mainstream, some consider using it to screen job applicants. Besides being unlawful discrimination, the science is highly unreliable.
The controversial DNA search that helped nab the 'Grim Sleeper' is winning over skepticsby Marisa GerberLos Angeles TimesOctober 25th, 2016Use of familial DNA to solve crimes is growing in popularity, raising concerns of 4th Amendment unreasonable search and seizure violations.
Dangers of an Unscientific Policy Process:
Why the UK’s legalization of “three-person babies” should not be the model for CRISPR
by Jessica Cussins, Biopolitical Times guest contributorOctober 25th, 2016The UK’s consideration of the science and public support for “mitochondrial replacement” may seem robust on its surface, but when it comes to CRISPR germline genome editing policy, we can and must do better.
CRISPR gene-editing controversy shows old ideas about East and West still prevailby Calvin Wai-Loon HoEcontimesOctober 24th, 2016Western imaginations tend to fantasize Asian countries as exotic, crude "others," viewing Chinese research as advancing primarily due to an assumed lack of regulation.
The Cash Cow in 'Fertility' Medicineby Pamela M TsigdinosHealthcare in AmericaOctober 23rd, 2016The unregulated fertility industry often fails to disclose: lucrative profits, poor outcomes, emotional burdens, and medical risks.
Blame bad incentives for bad scienceby Bethany BerkshireScienceNewsOctober 21st, 2016The publish-or-perish culture rewards researchers for the number of papers they publish, leading to sloppy and irreproducible science, and sometimes unethical practices.
First Spindle Nuclear Transfer Baby Has Low Mutant DNA Loadby Kate JohnsonMedscapeOctober 20th, 2016At the ASRM Scientific Congress, fertility doctors said they would continue using the mitochondrial manipulation procedure.
Should young women sell their eggs?by Donna de la CruzThe New York TimesOctober 20th, 2016The number of eggs used for IVF procedures is increasing, but few studies have been done on the long-term impact egg retrieval has on a woman’s fertility and overall health.
Surprisingly few new parents enlist in study to have baby's genome sequencedby Jocelyn KaiserScience MagazineOctober 19th, 2016The NIH-funded project, BabySeq, seeks to analyze protein-coding DNA for mutations in 7000 genes associated with childhood diseases.
Crispr’s IPO doesn’t hit its targetby Robert WeismanThe Boston GlobeOctober 19th, 2016CRISPR Therapeutics' public offering raises half that of its rivals Editas & Intellia -- a sign that the market may be pulling back on genome editing stocks.
California stem cell agency approves $30 million to fast-track clinical trialsby David JensenThe Sacramento BeeOctober 19th, 2016Dubbed the new "pitching machine," CIRM's new $30 million effort is designed to accelerate clinical trials of stem cell therapies.
Social science: Include social equity in California Biohubby Science FARE (Feminist Anti-Racist Equity) Collective: Jessica Cussins, Kate Weatherford Darling, Ugo Edu, Laura Mamo, Jenny Reardon & Charis ThompsonNatureOctober 19th, 2016The Chan-Zuckerberg initiative should use 5-7% of its Biohub research budget to design and monitor goals of justice and equality. Otherwise, social inequalities could limit the project's potential.
Reports of ‘three-parent babies’ multiplyby Sara ReardonNature NewsOctober 19th, 2016Claims of infants created using mitochondrial manipulation techniques in Mexico and China, and two pregnancies in the Ukraine, stir scientific and ethical debate.
What Stem Cell Researchers Talk About When They Talk About Ethicsby Danielle VentonKQEDOctober 18th, 2016"Engineers who design something expect it to work. But if you put something [designed] into an organism, the chances that something odd will happen are extremely high."
7 Highlights from Nuffield Council’s Review on the Ethics of Genome Editingby Jessica Cussins, Biopolitical Times guest contributorOctober 18th, 2016A recent UK report discusses social and political implications of genetically engineering human reproduction and other controversial CRISPR applications.
The Misleading Promise of I.V.F. for Women Over 40by Jane E. BrodyThe New York TimesOctober 17th, 2016The fertility industry focuses on the 20 percent of women who succeed, not the 80 percent failure rate.
Meet Prelude Fertility, The $200 Million Startup That Wants To Stop The Biological Clock[citing CGS' Marcy Darnovsky]by Miguel HelftForbesOctober 17th, 2016Despite the short and long-term risks of egg retrieval, fertility companies target young people as a new customer base, putting profits ahead of safety.
Mouse eggs made from skin cells in a dishby David CyranoskiNatureOctober 17th, 2016A research breakthrough sparks debate over the prospect of using stem cell techniques to produce synthetic human eggs from body tissue.
Can a DNA Test Really Predict Opiate Addiction?by Zachary SiegelThe Daily BeastOctober 15th, 2016A precision medicine company claims it can predict a patient’s risk of becoming addicted to opioids with 93% accuracy. But it has no peer-reviewed evidence.
DNA database could help predict your disease — then get you firedby David LazarusLos Angeles TimesOctober 14th, 2016Precision medicine raises the disturbing prospect of genetic haves and have-nots, and of discrimination based not on race, age or gender but on health.
Advocacy group anecdotes present one-sided picture of genetic testing for breast cancerby Mary Chris JaklevicHealth News ReviewOctober 13th, 2016The push to test for BRCA genes often glosses over the limited information it provides, advocates' corporate ties, and the lack of support for women who test positive.
Science group seeks to guide Silicon Valley philanthropistsby Erika Check HaydenNature NewsOctober 13th, 2016The Science Philanthropy Alliance works with wealthy individuals, including the Chan-Zuckerberg Initiative, on a confidential basis to advise them on funding basic research.
Three-person baby 'race' dangerous[citing CGS' Marcy Darnovsky]by James GallagherBBCOctober 12th, 2016Scientists and ethicists warn of fertility doctors forum-shopping to perform dangerous mitochondrial manipulation experiments.
CRISPR deployed to combat sickle-cell anaemiaby Heidi LedfordNature NewsOctober 12th, 2016Gene therapy aimed at a single-cell genetic condition shows some success in mice, while highlighting unknowns of human gene editing.
Designer and Discarded Genomesby Ruha Benjamine-flux ArchitectureOctober 12th, 2016Field notes from a Harvard meeting on a "synthetic human genome" moonshot reveal the anti-democratic foundations of HGP-Write.
Writing the First Human Genome by 2026 Is Synthetic Biology’s Grand Challengeby Jason DorrierSingularity HubOctober 10th, 2016AutoDesk's Andrew Hessel promises a functional fully synthesized human genome by 2026, continuing the HGP-Write hype that began with a closed meeting at Harvard in May.
Comment on "3-person IVF" procedures for infertility reportedly conducted in UkraineOctober 10th, 2016“These developments are another urgent sign that we need clear rules placing heritable human genetic modification off-limits on a national and international level.”
White Nonsense: Alt-right trolls are arguing over genetic tests they think “prove” their whitenessby Elspeth ReeveVICE NewsOctober 9th, 2016The pseudo-science of "biological race" is perpetuated by white nationalist online communities with "ancestral evidence" provided by 23andMe.
President signs Senate bill that protects eugenics victimsby Richard CraverWinston-Salem JournalOctober 7th, 2016State restitution payments will not decrease or eliminate federal benefits for people who were forcibly sterilized.
CRISPR Embryos at Karolinska: Controversies Demand Oversightby Elliot HosmanOctober 7th, 2016Ongoing gene editing experiments in human embryos around the world underscore the need to prohibit modifying cells for use in human reproduction.
Don’t Miss This: The Story of CRISPR Told in a Comicby Kayla TolentinoOctober 6th, 2016Illustrator Andy Warner helps to break down the complexities of the still unraveling CRISPR gene editing story in his recent piece "Bad Blood."
Uterus Transplants Fail Again: Why Are They So Difficult?by Rachael RettnerLive ScienceOctober 5th, 2016Four uterus transplants using live donors took place in Dallas, a first in the U.S. But three of the uteruses had to be removed due to lack of proper blood flow.
What’s the Longest Humans Can Live? 115 Years, New Study Saysby Carl ZimmerThe New York TimesOctober 5th, 2016Despite improvements in modern life and medicine, researchers claim that humans have reached the upper limit of longevity.
Dramatic Twists Could Upend Patent Battle Over CRISPR Genome-Editing Methodby Jon CohenScience MagazineOctober 5th, 2016The Broad Institute has asked officials to separate four of its issued patents from the larger case, which could permit "a way for both sides to walk away with a little IP in their pockets."
With New Program, DARPA To Encourage Safety "Brakes" For Gene Editingby Alex LashXconomyOctober 5th, 2016The US military R&D agency has launched a funding program called "Safe Genes" to find "safety measures that don’t slow us down."
The Promise of Indigenous Epigeneticsby Emma KowalDiscover SocietyOctober 4th, 2016Amid the hype surrounding the biological study of inter-generational trauma, we need to be aware that epigenetics could be used for racist agendas that work against Indigenous health and well-being.
Words Matter: "Hired Womb" vs. "Birth Mother"by Abby LippmanImpact EthicsOctober 3rd, 2016The words we choose to talk about gestational arrangements influence how we think about and regulate third-party reproduction.
Corporate Culture Has No Place in Academiaby Olof HallonstenNature NewsOctober 3rd, 2016A scandal at the Karolinska Institute demonstrates the risks of academic capitalism: a global trend that turns universities into businesses.
Sally Phillips: Do We Really Want a World without Down’s Syndrome?by Viv GroskopThe Guardian October 1st, 2016The UK national health service will now cover new tests to screen fetuses for Down syndrome. A mother and actress notes the likely result: "It becomes ‘your fault’ if you choose to have the baby."
This May Be The Most Horrible Thing That Donald Trump Believesby Marina Fang & JM RiegerThe Huffington PostSeptember 28th, 2016A film pulls together clips of Trump expressing his eugenic views that intelligence and success are genetically inherited, making some groups destined to failure.
Baby Born Using 'Three Parent' Technique, Doctors Say[citing CGS' Marcy Darnovsky]by Maggie FoxNBC NewsSeptember 28th, 2016"This fertility doctor openly acknowledged that he went to Mexico where 'there are no rules' in order to evade ongoing review processes and existing regulations in the US."
Meet the guy biohacking puppies to make them glow in the darkby Kristen V. BrownFusionSeptember 28th, 2016The goal isn’t just to make glowing Frankenpuppies. "I want to make perfect dogs...I don’t want slightly imperfect dogs."
"Three-parent baby" claim raises hopes — and ethical concernsby Sara ReardonNature NewsSeptember 28th, 2016Some are questioning why the US-based team went to Mexico, a country with less clear oversight of human embryo modification than, for instance, the United Kingdom or the United States.
Controversy Erupts Around Baby With Three Biological Parents[citing CGS]by Emily WillinghamForbesSeptember 28th, 2016A US fertility doctor travels to Mexico where "there are no rules" to use mitochondrial manipulation to produce a live birth.
Find a Sperm Donor with This UK Appby Selena LarsonCNNMoneySeptember 28th, 2016The London Sperm Bank's new mobile app lets consumers choose sperm provider traits including eye color, hair color, and race.
Doctors Dig for More Data About Patientsby Melanie EvansWall Street JournalSeptember 25th, 2016In the name of improving treatment, some hospitals are buying their patients' consumer and financial data from third-party brokers.
A Top Journalist is Suing the FDA Over Its Alleged Use of a Banned and Secretive Practice to Manipulate the Newsby Dave MosherBusiness InsiderSeptember 24th, 2016The FDA has imposed "close-hold embargoes," which allow reporters access to newsworthy information only if they agree not to contact outside sources, a keystone of journalistic due diligence.
Controversial Human Embryo Editing: 5 Things to Know[citing CGS' Marcy Darnovsky]by Rachael RettnerLiveScienceSeptember 23rd, 2016Basic CRISPR experiments in human embryos in Sweden raise questions about passing clear rules against using edited germ cells for reproduction and oversight.
The Newly Found Innocence of Paolo Macchiariniby Leonid SchneiderFor Better ScienceSeptember 23rd, 2016Suspicious justifications underlie recent university, media, and government defenses of the controversial stem cell surgeon.
Can CRISPR–Cas9 Boost Intelligence?by Jim KozubekScientific AmericanSeptember 23rd, 2016There are no superior genes, only genes that provide advantages with a tradeoff for other disadvantages. But some argue that there is a duty to manipulate the genetic code of future children.
Are Swedish Designer Babies Coming Soon?by Eric NiilerSeekerSeptember 23rd, 2016"What are the oversight and controls to prevent this technology from being misused and go to a stage that, for now, the scientific community has agreed is a no-go?"
As Kuwait imposes world’s first DNA collection law, attorney tries to fight itby Cyrus FarivarARS TechnicaSeptember 22nd, 2016"Compelling every citizen, resident, and visitor to submit a DNA sample to the government is similar to forcing house searches without a warrant."
Monsanto Licenses CRISPR Technology to Modify Crops — with Key Restrictionsby Sharon BegleySTATSeptember 22nd, 2016The Broad Institute has issued a CRISPR license to Monsanto, restricting any uses for gene drive, "terminator seeds," or tobacco R&D.
Breaking Taboo, Swedish Scientist Seeks To Edit DNA Of Healthy Human Embryos[citing CGS' Marcy Darnovsky]by Rob SteinNPRSeptember 22nd, 2016Using CRISPR gene editing on human embryos is a step toward attempts at producing genetically modified humans. It's not a step to be taken lightly.
The End of China’s One-Child Policy Has Put Huge Pressure on the Nation’s Sperm Banksby Hannah BeechTimeSeptember 21st, 2016Unlike in the US, selling sperm or eggs is illegal in China, but sperm banks get around that by offering men "subsidies." And illegal sperm banks have proliferated.
Titanic Clash Over CRISPR Patents Turns Uglyby Heidi LedfordNature September 21st, 2016The billion-dollar patent battle over CRISPR-Cas9 gene editing has moved from scientific minutiae to accusations of impropriety.
Stem Cell Advocates and Critics Push Back on FDA Guidelinesby Alexandra OssolaScientific AmericanSeptember 21st, 2016"After these public meetings the FDA may...send a signal that it is indeed going to rein in the dangerous stem cell clinic industry for real."
Cut-Throat Academia Leads to 'Natural Selection of Bad Science', Claims Studyby Hannah DevlinThe GuardianSeptember 20th, 2016Under pressures of funding and attracting "progeny," many scientists publish surprising yet unreliable findings.
Patients Turn To San Diego Stem Cell Companies For Costly, Unproven Treatmentsby David WagnerKPBSSeptember 20th, 2016One patient lost hundreds of thousands of dollars pursuing unapproved stem cell treatments, and was left with a painful tumor and significantly decreased mobility.
White House science advisers urge Justice Dept., judges to raise forensic standardsby Spencer S. HsuWashington PostSeptember 20th, 2016A new report cautions that widely used methods to trace complex DNA samples to criminal defendants fall short of scientific standards.
Why we need a law to prevent genetic discriminationby Yvonne Bombard, Ronald Cohn & Stephen SchererThe Globe and Mail [Canada]September 19th, 2016After unanimous passage through Canada's Senate, a bill on genetic discrimination is now before the House of Commons.
Human Chimera Research’s Huge (and Thorny) Potentialby Paul KnoepflerWiredSeptember 19th, 2016A stem cell researcher notes a range of tough bioethical questions on the table if the NIH moves forward with lifting its research ban.
Why Some Of India's Surrogate Moms Are Full Of Regretby Julie McCarthyNPRSeptember 18th, 2016Women employed as surrogates are rarely in a position to change the fundamental circumstance of their poverty because the payments simply aren't enough.
Everything you wanted to know about genetic engineering in one chirpy video[citing CGS' Elliot Hosman]by Michael CookBioEdgeSeptember 16th, 2016The animated video explains the complex present and speculative future of CRISPR well, but takes too optimistic a view of how it might be used.
US toughens rules for clinical-trial transparencyby Sara ReardonNature NewsSeptember 16th, 2016Under new regulations, researchers must register information on the design and results of clinical trials within 21 days of enrolling their first patient, regardless of outcome.
‘Motherless babies!’ How to create a tabloid science headline in five easy stepsby Gretchen VogelScience MagazineSeptember 14th, 2016Here's the recipe for transforming a modest developmental biology paper into a blockbuster story.
Peru Fails to Deliver for Indigenous Womenby Shena CavalloopenDemocracySeptember 12th, 2016Some 300,000 poor rural indigenous people were forcibly sterilized according to state "quotas," but a public prosecutor has decided not to pursue charges of "crimes against humanity."
When Evolution Fights Back Against Genetic Engineeringby Brooke BorelThe AtlanticSeptember 12th, 2016Gene drive technology raises intense ethical and practical concerns, not only from critics but from the very scientists who are working with it.
Seeking to Join Editas, Intellia, CRISPR Therapeutics Makes Long Awaited IPO Pushby Ben FidlerXconomySeptember 12th, 2016Emmanuelle Charpentier’s biotech firm has filed to go public, joining the start-ups of other CRISPR-Cas9 co-discoverers: Jennifer Doudna and Feng Zhang.
DNA Dragnet: In Some Cities, Police Go From Stop-and-Frisk to Stop-and-Spitby Lauren KirchnerProPublicaSeptember 12th, 2016Private police DNA databases are multiplying, and are subject to no state or federal regulation or oversight.
Will Genetic Engineering Really Change Everything Forever? [Video Review]by Elliot HosmanSeptember 8th, 2016The hype surrounding CRISPR gene editing and a future of designer babies is on playback with a popular new video. Is its optimism justified? And who decides what’s inevitable?
Scandals Waiting to Happen: Institutional Conflicts of Interest at California Stem Cell Agencyby Pete ShanksBiopolitical TimesSeptember 8th, 2016StemCells Inc., which has received tens of millions of dollars from the state-funded stem cell agency, paid its president a hefty sum when he joined its board a week after resigning his position.
Victory: Eggs-for-Research Bill Dies in California Legislatureby Emily Galpern, Biopolitical Times guest contributorSeptember 8th, 2016A bill that would have expanded the commercial markets for human eggs, putting women’s health at risk, never made it to the Governor’s desk.
Remembering Ruth Hubbardby Marcy DarnovskySeptember 8th, 2016Ruth Hubbard — biologist, feminist scholar, social justice advocate, and critic of what she termed “the gene myth” — has died.
5 Reasons Why We Need People with Disabilities in the CRISPR Debatesby Emily Beitiks, Biopolitical Times guest contributorSeptember 8th, 2016“Why do I have to keep justifying my existence?” How gene editing policy discussions reproduce ableist assumptions and generate advocacy fatigue.
Women Freeze Eggs to Gain Time to Find the Right Partners Study Findsby Nicola DavisThe Guardian September 7th, 2016"It is quite dangerous to start suggesting that by medicalising a social problem, we can cure it."
Passing My Disability On to My Childrenby Sheila BlackThe New York TimesSeptember 7th, 2016Drawing on hew own experience, the author challenges the logic of creating "designer babies" with screening or modifying technologies.
The Perils of Planned Extinctionsby Claire Hope CummingsProject SyndicateSeptember 6th, 2016Instead of taking time to fully consider the ethical, ecological, and social issues of gene-drive technology, many are aggressively promoting its use in conservation.
Another Scathing Report Causes More Eminent Heads to Roll in the Macchiarini Scandalby Gretchen VogelScience MagazineSeptember 6th, 2016Fallout continues from a scandal involving patient deaths after a surgeon implanted artificial tracheae seeded with stem cells.
Stem Cell Company Paid $443,500 to Former Head of State Agency That Funds Researchby David JensenThe Sacramento BeeSeptember 1st, 2016Conflict-of-interest allegations have dogged the agency since it was created in 2004 by California voters to use state bond proceeds to finance stem cell research.
Two Women Pregnant after Having Ovarian Mitochondria Injected into EggsThe Japan TimesAugust 30th, 2016Some experts are calling for a careful response to the new procedure, as its safety and effects have not yet been scientifically verified.
Sperm Donor at Heart of Canadian Lawsuits Admits He Lied to Company Xytex, Police Sayby Diana MehtaThe Canadian PressAugust 30th, 2016Amidst pending lawsuits, Sperm Donor 9623 has turned himself in to the police for "falsifying paperwork."
Why Gene Tests for Cancer Don't Offer More Answersby Jessica WapnerScientific AmericanAugust 29th, 2016Genetic profiling of tumors has a long way to go. Many patients learn that their cancers have mutations for which no drug exists
Forget Ideology, Liberal Democracy’s Newest Threats Come From Technology and Bioscienceby John NaughtonThe GuardianAugust 28th, 2016Homo Deus: A Brief History of Tomorrow, reviewed here, argues that "In the 21st century, those who ride the train of progress will acquire divine abilities of creation and destruction, while those left behind will face extinction."
Adopted Koreans, Stymied in Search of Birth Parents, Find Hope in a Cotton Swabby Marie Tae McDermottNew York TimesAugust 27th, 2016In search for birth family connections, South Korean adoptees turn to the personal genomics industry for answers.
Why India’s New Surrogacy Bill Is Bad For Womenby Sharmila RudrappaThe Huffington PostAugust 26th, 2016In an attempt to regulate surrogacy, the bill has further deregulated the industry and opened the possibilities for deeper harms to working class women.
The Little-Known History of the Forced Sterilization of Native American Womenby Erin BlakemoreJSTOR DailyAugust 25th, 2016Both the IHS and its dark history of forced sterilization were the result of longstanding, often ham-fisted attempts to "address" American Indians’ health care needs.
FBI’s New DNA Process Produces More Matches in Suspect Databaseby Devlin BarrettWall Street JournalAugust 25th, 2016In May, the Bureau reduced the number of genetic locations required for a potential match (from 10-13 to 8-9 loci), resulting in thousands of new "hits."
New Surrogacy Bill Bars Married Couples with Kids, NRIs, Gays, Live-ins, Foreignersby Express News ServiceThe Indian ExpressAugust 25th, 2016The draft bill permits only "altruistic surrogacy" for childless couples who have been married for at least five years.
Surrogacy Still Big Business in Shanghai Despite National Banby Alice YanSouth China Morning PostAugust 25th, 2016Since China's one-child policy relaxed two years ago, the surrogacy industry has been expanding despite recent police raids.
Kuwait’s new DNA collection law is scarier than we ever imaginedby Daniel RiveroFusionAugust 24th, 2016National security policies require residents, citizens, and visitors to submit DNA samples, shaping new definitions of the country's citizenship.
Babies’ Health Could Be Affected by Variation in IVF Nutrientsby Jessica HamzelouNew Scientist August 24th, 2016Pharmaceutical companies keep the "recipe" of IVF culture media a secret, but research suggests long-term health effects for resulting children.
Accessible Synthetic Biology Raises New Concerns for DIY Biological Warfareby Joseph NeighborVICE MotherboardAugust 23rd, 2016The monopoly on biology once held by governments and universities has been broken, posing significant challenges for the international community.
Experimental Cancer Therapy Holds Great Promise — But at Great Costby Meghana KeshavanSTATAugust 23rd, 2016Patients undergoing immunotherapy clinical trials with CAR-T cells are at risk for deadly cytokine release syndrome, but pharmaceutical companies are racing to get FDA approval.
Humans of the Future Could Be Much Faster Than Usain Bolt or Michael PhelpsSouth China Morning PostAugust 23rd, 2016We could be getting closer to the post-human era, where we modify our own genetics to the point that we're less recognisably "human" than ever before.
Gene Mapping May Not Be for Everyoneby Karen WeintraubUSA TodayAugust 22nd, 2016Genetic tests reveal variations in the genome that might not cause problems but could lead to unnecessary medical tests, anxiety and treatments.
Staying Ahead of Technology’s Curvesby Doug HillBoston GlobeAugust 21st, 2016Embracing disruptive technologies without trying to anticipate and prepare for their potential consequences is now, more than ever, a bad idea.
These New Stem Cell Treatments Are Expensive — and Unprovenby Michael HiltzikLos Angeles TimesAugust 19th, 2016"Stem cells have become a medical buzzword," Paul Knoepfler notes. "I see a lot of businesses using direct marketing to patients to take advantage of that."
Hacking life: Scientists ‘recode’ DNA in step toward lab-made organismsby Sharon BegleySTATAugust 18th, 2016It may not be long before scientists assemble genomes of higher organisms, as George Church proposed to do for the human genome.
In CRISPR Fight, Co-Inventor Says Broad Institute Misled Patent Officeby Antonio RegaladoMIT Technology ReviewIs an email between competing researchers a smoking gun in the billion-dollar battle over patent rights for gene editing?
ExAC Project Pins Down Rare Gene VariantsNature EditorialAugust 17th, 2016A new study found only 9 of 192 variants were actually linked to pathogenic disease despite ongoing use in diagnosis and treatment.
In the Fight for Our Genes, Could We Lose What Makes Us Human?by Ziyaad BhoratopenDemocracyAugust 17th, 2016When genetics become the next currency for corporations and governments we risk the commercialization and politicization of who we are on a level far deeper than our skin.
What happens when anyone can edit genes at home? We’re about to find outby Dyllan FurnessDigital TrendsAugust 15th, 2016Scientists express concern about the unintentional consequences of gene editing starter kits proliferating in biohacking communities.
Illumina Would Like You to Sequence More DNA, Pleaseby Sarah ZhangWIREDAugust 15th, 2016The leader of the DNA sequencing market has a start-up accelerator program to find new applications for its technology.
Public policy must address technology’s impact[citing CGS' Marcy Darnovsky]by John M. HeinThe Sacramento BeeAugust 13th, 2016“We need to develop habits of mind, or habits of social interaction, that will allow for some very robust public participation on the use of these powerful technologies,” says Marcy Darnovsky.
Ethical questions raised in search for Sardinian centenarians' secretsby Stephanie KirchgaessnerThe GuardianAugust 12th, 2016Samples from residents of Sardinia’s "Blue Zone," who are famed for longevity, have been sold to a for-profit British research firm.
Scientists break 13-year silence to insist 'three-parent baby' technique is safeby Ian JohnstonThe IndependentAugust 11th, 2016The researchers conclude the technique "can produce a viable pregnancy." But the pregnancy they established resulted in miscarriage.
Diversity, disability and eugenics: An interview with Rob Sparrowby Xavier SymonsBioEdgeAugust 11th, 2016Philosophers and the medical profession have been way too swift to make judgments about other people’s quality of life. We're not as far from the bad old eugenics as many think.
Inside New York’s Radical Egg-Freezing Clinic for Women[citing CGS' Marcy Darnovsky]by Lizzie Crocker & Abby HaglageThe Daily BeastAugust 10th, 2016Extend Fertility in Manhattan offers egg freezing at half market price. It’s also the first standalone practice of its kind in the U.S.
Finding Good Pain Treatment Is Hard. If You’re Not White, It’s Even Harder.by Abby GoodnoughThe New York TimesAugust 9th, 2016Researchers have found evidence of racial bias and stereotyping in recognizing and treating pain among people of color, particularly black patients.
The Human Genome Is Having Its Facebook Momentby Whet MoserChicago MagazineAugust 9th, 2016In less than a decade, as many people could have their genomes sequenced as use the social networking site (~1.7 billion monthly users).
To Err is Biotechnological: Reflections on Pew’s Human Enhancement Surveyby Gina Maranto, Biopolitical Times guest contributorAugust 9th, 2016Biotechnologies aimed at human enhancement come with a guaranteed set of deficits, inadequacies, inconveniences, and risks.
Mind your genes! The dark legacy of eugenics lives onby Natasha MillerABC [Australia]August 8th, 2016The misguided science of behavioral genetics and the social engineering potential of CRISPR show we have much to remember about the history of eugenics.
How biotech executives profit from legal insider tradesby Damian GardeSTATAugust 8th, 2016Biotech bigwigs might be gaming an insider trading loophole to offset losses after failed clinical trials.
Do Olympians Have Better Genes Than You And Me?by Christina FarrFast CompanyAugust 6th, 2016Genetic tests aimed at discerning the genetic basis for athletic ability could be used coercively, and are undermined by important environmental factors.
Silicon Valley was going to disrupt capitalism. Now it’s just enhancing itby Evgeny MorozovThe GuardianAugust 6th, 2016Tech giants thought they would beat old businesses but the guardians of capitalism are using data troves to become more, not less, resilient.
The surprisingly small benefit of some very (expensive) Big Ideasby Joe GibesBioethics @ TIUAugust 5th, 2016A new article in JAMA looks at the unfulfilled hype that has become entrenched in the fields of stem cells, genetics, and electronic health records.
Booming demand, state protections attract commercial surrogate birthingby Kathy RobertsonSacramento BeeAugust 5th, 2016California has more surrogacy regulation than most states. But the founder of an agency comments, "Anybody in the whole world – even a felon – can open an agency. There is no licensing, no background check."
The Human Egg Business: More Media Coverage of California Cash-for-Eggs Legislation[citing CGS]by David JensenCalifornia Stem Cell ReportAugust 5th, 2016AB 2531, backed by the fertility industry, would remove caps on payments for egg retrieval, thus inducing women to gamble with their health.
The $100,000-Per-Year Pill: How US Health Agencies Choose Pharma Over Patientsby Fran QuigleyTruthoutAugust 5th, 2016Big Pharma wasn't always the beneficiary of US government-funded medicine breakthroughs. Then came the 1980s and the Bayh-Dole Act.
Questions about Deaths in Cancer Trials using Gene-Altered Cellsby Katherine DrabiakBiopolitical Times guest contributorAugust 5th, 2016Excitement about immunotherapy and gene therapy approaches to cancer has eclipsed ethical questions about seven recent deaths in clinical trials.
Many pediatric clinical trials go unpublished or unfinishedby Ed SilvermanSTATAugust 4th, 2016Of 559 clinical trials, 19% were discontinued. Of 455 completed trials, 30% never published results. Over 69,000 children participated.
NIH Plans To Lift Ban On Research Funds For Part-Human, Part-Animal Embryosby Rob SteinNPRAugust 4th, 2016Concerns include the inadvertent creation of animals with partly human brains, endowing them with some semblance of human consciousness or human thinking abilities. (Public comment until September 4.)
What Ever Happened to Cloning?[cites CGS' Marcy Darnovsky]by Kimberly LeonardUS News & World ReportAugust 4th, 2016Twenty years since Dolly, the field of cloning remains highly inefficient for animals and too unethical to attempt with humans.
Bill to expand market in women’s egg donations would undermine safeguards[citing CGS]by Deborah OrtizSacramento BeeAugust 4th, 2016Let’s not repeal a law that safeguards the health of women. We can support biomedical research without putting women’s health at risk.
In crisis-hit Venezuela young women seek sterilisationby Alexandra UlmerReutersAugust 3rd, 2016Food shortages, inflation, crumbling medical sector, and anti-abortion climate have caused a growing number of women to reluctantly opt for tubal ligations.
Why gene-therapy drugs are so expensiveby N.L.The EconomistAugust 3rd, 2016British pharmaceutical company GSK announced it will charge US$665,000 for a gene therapy for ADA-SCID (aka "bubble boy disease").
The Case Against Public Investment in Reproductive Genetic Modificationby Jessica Cussins, Biopolitical Times guest contributorAugust 3rd, 2016Philosopher Tina Rulli argues that three-person IVF germline modification is not a “life-saving” medical therapy.
Peter Thiel Is Very, Very Interested in Young People's Bloodby Jeff BercoviciInc.August 1st, 2016The controversial venture capitalist believes transfusions may hold the key to his dream of living forever.
Editorial Precision? Snapshot of CRISPR germline in the newsby Hasmik DjoulakianAugust 1st, 2016Five questions about how the media talks about germline editing.
It's time for a conversation on parental surrogacy rulesby Celine CooperMontreal GazetteJuly 31st, 2016Is Montreal inching closer to relaxing or even abandoning its entrenched disapproval of procreative surrogacy?
35 couples used surrogates since new law in placeThe Nation [Thailand]July 31st, 2016Government agencies will track outcomes for women working as surrogates and children born in surrogacy arrangements, and analyse information on ways to improve regulations.
How Your Health Data Lead A Not-So-Secret Life Onlineby Angus ChenNPRJuly 30th, 2016The vast majority of mobile health apps on the marketplace aren't covered by the federal law protecting health data, HIPAA.
Stem Cell Therapies Are Still Mostly Theory, Yet Clinics Are Flourishingby Gina KolataThe New York TimesJuly 28th, 2016570 clinics in the United States are offering untested stem cell therapies.
How British are you? Mapped: DNA testing shows the most Anglo-Saxon regions in UK by Hannah FurnessThe Telegraph [UK]July 28th, 2016AncestryDNA reveals British people's genealogies vary by region and are less clearly defined than people tend to think.
Editas signs genome-edited stem cell pact with GSK, Biogen biotech partnerby Ben AdamsFierce BiotechJuly 28th, 2016Editas Medicine has a hand in a number of gene therapy initiatives.
When Baby-Making Moves From the Bedroom to the Laboratoryby Natalie SchreyerMother JonesJuly 28th, 2016"You want to get the best car," says Hank Greely. "Why don't you want to get the best baby?"
Congress wrestles with providing fertility benefits for injured veterans and servicemembersby Karoun DemirjianThe Washington PostJuly 27th, 2016Senator Patty Murray believes the ban on IVF and other fertility options is outdated.
Guardian ad litem bills gay couple $100K for report questioning surrogacyby Debra Cassens WeissABA Journal Daily NewsJuly 27th, 2016The judge was extremely critical of surrogacy and his remarks have since been called “unduly harsh” by another judge.
We’re on the cusp of a gene editing revolution, are we ready?by EditorialNew ScientistJuly 27th, 2016Fast-moving genetic technologies may be on the road to outpacing public acceptance and debate.
Can genes really predict how well you’ll do academically?by Daphne MartschenkoThe ConversationJuly 26th, 2016Genetic intelligence research has eugenic histories and may minimize the role of social and political environments.
Human Enhancement Freaks People Out, Study Finds; Designer Babies Might 'Meddle With Nature'by Ed CaraMedical DailyJuly 26th, 2016Survey reveals more wariness than excitement for genetic technologies that would 'enhance' people.
Human Enhancement: The Scientific and Ethical Dimensions of Striving for Perfectionby David MasciPew Research CenterJuly 26th, 2016Genetic technologies raise questions ranging from the technical to the social.
Medical schools must play a role in addressing racial disparitiesby Jocelyn Stried, Margaret Hayden, Rahul Nayajk & Cameron NuttSTATJuly 25th, 2016A legacy of racial injustice has shaped the institutions that train our doctors. This inequity recapitulates itself in medical curricula.
Craig Venter’s Latest Productionby Arlene WeintraubMIT Technology ReviewJuly 25th, 2016For now, at least, it's "only the rich who can pay right now for genome sequencing."
Taking Genomic Data Globalby Elizabeth WoykeMIT Technology ReviewJuly 25th, 2016Precision medicine startups are now focusing on Asia.
Turning back the biological clock comes at a price by Rhiannon Lucy CosslettThe GuardianJuly 25th, 2016Egg freezing is marketed as the answer to precarious young lives yet excludes most of those it claims to help.
'Activist judge' compares surrogacy to human traffickingby Daniel BiceMilwaukee-Wisconsin Journal SentinelJuly 24th, 2016The couple was forced to take second and third mortgages out on their home, but they were finally granted parental rights.
Chinese parents look to genes to see what talents their child hasby Yang XiGlobal TimesJuly 24th, 2016Some parents believe this helps them make parenting decisions, including what extracurricular activities their children pursue.
Can this woman cure ageing with gene therapy?by Dara Mohammadi & Nicola DavisThe GuardianJuly 24th, 2016Elizabeth Parrish has tried out her company’s anti-aging gene therapy, but the biology of aging may be more complicated than we understand.
Uncle Sam Wants You — Or at Least Your Genetic and Lifestyle Informationby Robert PearThe New York TimesJuly 23rd, 2016The Precision Medicine Initiative will seek participants from various geographies and socioeconomic statuses across the country.
Should we pay women to donate their eggs for research? No, and here's why.[citing CGS’ Marcy Darnovsky, fellow Lisa Ikemoto]by Michael HiltzikThe Los Angeles TimesJuly 22nd, 2016The risks of egg retrieval, particularly long-term risks, are not yet understood due to a lack of studies.
Chinese scientists to pioneer first human CRISPR trialby David CyranoskiNature NewsJuly 21st, 2016Gene-editing technique to treat lung cancer is due to be tested in people in August.
Sperm Banks Accused of Losing Samples and Lying About Donorsby Tamar LewinThe New York TimesJuly 21st, 2016Sperm banks are not required to verify information provided by sperm donors.
Nudging patients into clinical trialsby Bradley J. FikesThe San Diego Union-TribuneJuly 20th, 2016Incentives include money and rewards such as iPads.
Gene Therapy Trial Wrenches Families as One Child’s Death Saves Anotherby Antonio RegaladoMIT Technology ReviewJuly 20th, 2016The new DNA fix stops a brain-destroying terminal illness, but only if it’s given early enough.
Fertility doc Antinori indictedASNAJuly 20th, 2016The fertility doctor is charged with forcibly removing eggs from a patient, who told police he bound and sedated her. The doctor has accused her of being a member of ISIS.
Roma women share stories of forced sterilisationby Renate van der ZeeAl Jazeera [Czech Republic]July 19th, 2016The systematic sterilisation of Roma women was state policy in the former Czechoslovakia. The Czech government has rejected a compensation law.
Recruiter Matchtech changes name to Gattaca - same as the hit Hollywood movie about eugenicsby Alan ToveyThe TelegraphJuly 18th, 2016The company claims they did not even consider the connection to the film when they chose the new name.
How Do You Regulate the Digital Health Revolution?by Laura EntisFortuneJuly 18th, 2016Digital health apps and other startups may claim to be more effective than they actually are.
The White House Is Pushing Precision Medicine, but It Won’t Happen for Yearsby Mike OrcuttMIT Technology ReviewJuly 18th, 2016Costs are high and the science is not developed enough.
Do CRISPR enthusiasts have their head in the sand about the safety of gene editing? by Sharon BegleySTATJuly 18th, 2016Off-target effects and other concerns around genome editing should be taken more seriously.
Genome Tea Leavesby Sheldon KrimskyLos Angeles Review of BooksJuly 17th, 2016A review of Siddhartha Mukherjee’s The Gene: An Intimate History and Steven Monroe Lipkin’s The Age of Genomes: Tales from the Front Lines of Genetic Medicine.
U.N. rights panel urges Kuwait to amend broad DNA testing lawby Stephanie NebehayReutersJuly 15th, 2016The compulsory DNA testing would be a significant violation of people's privacy.
Pro and Con: Should Gene Editing Be Performed on Human Embryos? by John Harris (Pro); Marcy Darnovsky (Con)National GeographicJuly 15th, 2016Harris: "Research on Gene Editing in Humans Must Continue"
Darnovsky: "Do Not Open the Door to Editing Genes in Future Humans"
The Direct-to-Consumer Stem Cell Industry in the USby Pete ShanksBiopolitical TimesJuly 15th, 2016There are more stem-cell clinics than anyone suspected, and it’s not clear that they are operating with proper supervision.
The Dark Secrets of this Now-Empty Island in Maineby David JesterAtlas ObscuraJuly 14th, 2016Malaga Island was home to a fishing community. But in 1911, a racist pseudoscience and greedy politicians changed all that.
The EEOC’s Final Rule on GINA and Employer-Sponsored Wellness Programs to Take Effect This Monthby Jennifer K. WagnerGenomics Law ReportJuly 14th, 2016The Genetic Information Nondiscrimination Act now has updated regulations around health information obtained from employees' spouses.
No One Should Edit The Genes Of Embryos To Make Babies, NIH Chief Says[originally published as "At Gene Editing Meeting, Scientists Discuss God, Racism, Designer Babies"]by Nidhi SubbaramanBuzzFeedJuly 14th, 2016Opponents of germline gene editing have strong concerns about both the safety and social consequences of altering reproductive cells.
[September] Victory on CA Eggs-for-Research Bill | Gene Editing Changes Everything? | Jobs at CGSOur monthly newsletter Biopolitical Views & News rounds up our commentary and recent news stories. Here's the September issue!
A Medical Mystery of the Best Kind: Major Diseases Are in Declineby Gina KolataThe New York TimesJuly 14th, 2016Improvements in treatment and prevention account for only part of the decline.
Resumed stem cell study by EditorialThe Korea TimesJuly 13th, 2016Cloning-based stem cell research in Korea is set to resume, and will use nearly 600 human eggs.
Puffing Cryonics in New Scientist?by Pete ShanksBiopolitical TimesJuly 13th, 2016New Scientist is a popular science magazine that sometimes prioritizes popularity over science.
Considering Gene Editingby Jef AkstThe ScientistJuly 12th, 2016"Given the world as we know it, germline genetic enhancement could exacerbate the already obscene gap between the 'haves' and the 'have nots.'"
Frozen Eggs and Heated Debatesby Angel Petropanagos, Biopolitical Times guest contributorJuly 12th, 2016What’s missing and what’s misrepresented in public debates about social egg freezing?
One Country's Disturbing Project to Build a Complete DNA Databank of Every Citizen and Foreign Visitor Is Already Underway by Ava KofmanAlternetJuly 11th, 2016The Gulf nation of Kuwait plans to build the world’s largest DNA database this year.
Gene Editing: The Dual-use Conundrumby Janet PhelanNew Eastern OutlookJuly 11th, 2016The office of the Director of National Intelligence declined to comment further on the inclusion of gene editing as a potential "weapon of mass destruction."
Don’t Eat the Yellow Rice: The Danger of Deploying Vitamin A Golden Riceby Ted GreinerIndependent Science NewsJuly 11th, 2016From the beginning, the purpose of "golden rice" was to be a tool for use in shaming GMO critics.
Sustainable Week: Fixing Our Broken Moral Compass[citing CGS’ Elliot Hosman]by Chuck SternBTRtoday July 8th, 2016Who decides what is good and bad, what is that person or entity's agenda?
Why scientists' failure to understand GM opposition is stifling debate and halting progress by Sarah HartleyThe ConversationJuly 7th, 2016There are both scientific and social problems with "Golden Rice." Are its supporters using their privilege and authority to promote a particular technological solution to a political problem?
Eugenics bill passes Houseby Kevin EllisShelby StarJuly 7th, 2016The North Carolina bill will ensure that compensation payments to victims of the state's eugenic sterilization program are not counted as income.
Biotech execs in search of human guinea pigs find eager subjects: themselvesby Elizabeth PrestonSTATJuly 7th, 2016Self-experimentation has both perks and downfalls.
President Obama’s 1-million-person health study kicks off with five recruitment centersby Jocelyn KaiserScience MagazineJuly 7th, 2016The early stages of the biobank are set in motion.
In clinical trials, for-profit review boards are taking over for hospitals. Should they?by Sheila KaplanSTATJuly 6th, 2016Commercial IRBs often have conflicts of interest.
Price Gouging and the Dangerous New Breed of Pharma Companiesby A. Gordon SmithHarvard Business ReviewJuly 6th, 2016Some pharmaceutical companies prioritize profits instead of research.
US firm begins to market Cambodia-based surrogacy serviceby Will Jackson & Vandy MuongThe Phnom Penh PostJuly 6th, 2016Surrogacy Cambodia markets cross-border surrogacy despite the Cambodian government's tacit disapproval.
Sweden’s national DNA database could be released to private firmsby Tom MendelsohnARS TechnicaJuly 6th, 2016The country has a closely guarded registry of every citizen under the age of 43.
Fresh concerns raised over controversial 'three parent baby' therapy which aims to eliminate inherited diseaseThe Irish ExaminerJuly 6th, 2016Research has shown adverse effects on metabolism and lifespan, among other concerns.
Why science needs progressive voices more than ever by Alice BellThe GuardianJuly 6th, 2016After Brexit, science must speak up for those who have been marginalized.
State should settle quickly with eugenics victimsThe Lincoln Times-NewsJuly 5th, 2016The General Assembly has allocated $10 million for 220 victims, but those funds have yet to be distributed.
A Nation Ruled by Science Is a Terrible Ideaby Jeffrey GuhinSlateJuly 5th, 2016Logic and rationality can erase the nuances of people's lives.
These People Were Likely Victims of a Swedish Eugenics Institutionby Jordan G. TeicherSlateJuly 5th, 2016A photographer highlights the photos of eugenics victims whose stories have been ignored over the years.
Influential Scientific Journal Rips Effort to Loosen Stem Cell Research Rulesby David JensenCalifornia Stem Cell ReportJuly 5th, 2016Proposed treatments have not received FDA approval due to inefficacy and safety concerns.
FDA should stand firm on stem-cell treatmentsby Editorial BoardNatureJuly 5th, 2016Regulation of stem cell treatments is critical, given that many of the treatments don't even work.
Find the time to discuss new bioweaponsby Malcolm DandoNature World ViewJuly 5th, 2016The Biological Weapons Convention must undergo reassessment, given emerging scientific dangers.
'False Hopes, Sizable Profits' -- The Nation's Largely Unregulated Stem Cell Clinicsby David JensenCalifornia Stem Cell ReportJuly 1st, 2016"The clinics use hope as a marketing tool. A weapon," writes Paul Knoepfler.
The "Outing" of Sperm Donor 9623by Hasmik DjoulakianBiopolitical TimesJuly 1st, 2016A lawsuit by families who used the sperm of a "schizophrenic felon" lands at the complicated intersection of fertility clinic negligence, genetic reductionism, disability, and eugenics.
British Woman, 60, Wins Legal Round in Fight to Give Birth to Grandchildby Dan BilefskyThe New York TimesJune 30th, 2016Issues of informed consent have been re-evaluated.
Unproven Stem Cell Clinics Proliferate in the U.S.by Dina Fine MaronScientific AmericanJune 30th, 2016570 websites advertise unproven therapies for sports injuries and conditions including autism, multiple sclerosis and Alzheimer’s disease.
A DNA Test Won’t Explain Elizabeth Warren’s Ancestryby Matt MillerSlateJune 29th, 2016Could more data that would improve the precision of ancestry tests? Probably not — in fact, it might get more complicated.
Hateful politics infiltrate human genome editing debate in Franceby Elliot HosmanJune 29th, 2016New campaign calling for an international moratorium on CRISPR embryos experiments launched by prominent anti-abortion, anti-LGBT French group.
Gene-therapy trials must proceed with cautionby EditorialNatureJune 28th, 2016Past mistakes, which have ranged from harmful to deadly, must be prevented from recurring.
This scientist is trying to stop a lab-created global disasterby Kristen V. BrownFusionJune 27th, 2016"If we misuse our power, we lose the trust. That is the tightrope we walk," says Kevin Esvelt.
The Supreme Court decision that's shaking up biotechby Damian GardeSTATJune 27th, 2016A lower court's decision will stand: Sequenom can't patent its prenatal gene test because it is based on a natural biological process.
What does Brexit mean for bioethics?by Xavier SymonsBioEdgeJune 25th, 2016The UK may not leave the Council of Europe, the umbrella organization for the Committee on Bioethics.
All about the base: New businesses eye the opportunities in managing genome dataThe EconomistJune 25th, 2016Currently, one firm - Illumina - controls 70% of a market worth $3.3 billion in 2015.
CRISPR Therapeutics adds $38M to Series B pot, but lags behind Parkerby Ben AdamsFierce BiotechJune 24th, 2016An NIH committee has backed a study funded by billionaire Sean Parker that will attempt to alter the T cells of 15 people with cancer.
Bill covering in vitro fertilization for injured veterans clears the House by Seattle Times StaffThe Seattle TimesJune 23rd, 2016Veterans Affairs is closer to paying for in vitro fertilization for injured soldiers seeking to have children.
A Cautionary Tale of "Stem Cell Tourism"by Gina KolataThe New York TimesJune 22nd, 2016A patient who sought dubious stem cell therapies now has an aggressive tumor in his spine that doctors don't know how to treat.
23andMe Sells Data for Drug Searchby Antonio RegaladoMIT Technology ReviewJune 21st, 201623andMe is monetizing DNA rather the way Facebook makes money from our "likes." What’s more, it gets its customers to pay for the privilege.
Federal Oversight Group Has Complaints But Says Yes To CRISPR Trialby Alex LashXconomyJune 21st, 2016Despite worries about conflict of interest, an NIH committee voted to let researchers move ahead with a clinical trial that could be the first use of CRISPR-Cas9 in a human treatment.
Book Review: Discounted Life - The Price of Global Surrogacy in Indiaby Ëlo LuikBioNewsJune 20th, 2016Rudrappa locates surrogacy within the histories of politics and control as well as aspiration, nationalism and modernisation that the bodies of working-class Indian women have long been subjects of and subjected to.
Money Behind First CRISPR Test? It’s from Internet Billionaire Sean Parkerby Antonio RegaladoMIT Technology ReviewJune 20th, 2016Parker’s foundation is unusual because it says it will control patents on research it funds and even bring treatments to market.
Read Sonia Sotomayor’s Atomic Bomb of a Dissent Slamming Racial Profiling and Mass Imprisonmentby Mark Joseph SternSlateJune 20th, 2016Her dissent explains the extent to which police violate predominantly black and brown people's bodily integrity during "stop and frisk" procedures.
Do women who donate their eggs run a health risk?by Sandra G. BoodmanThe Washington PostJune 20th, 2016Health advocates say that donors are being falsely reassured that the process is safe, without being told that there is no definitive research.
Japanese city backs egg-freezing scheme to boost birthrate by Associated Press [Urayasu, Japan]The Guardian June 20th, 2016The city of Urayasu is allocating £600,000 for a project in which women will receive a substantial discount to freeze their eggs.
Workers May Soon Have To Share Health Data — Or Pay A Penaltyby Stephanie M. LeeBuzzFeed NewsJune 18th, 2016Ever thought about joining your work’s wellness program? The consequences of opting out could soon get stiffer.
Subsidised egg freezing isn’t the answer to Japan’s birth rateby Angel PetropanagosNew ScientistJune 17th, 2016The health risks of egg retrieval make Japan's publicly-funded egg freezing initiative a poor solution to the country's problem of population shrinkage.
Good riddance to a repugnant California cap on family aidby The Times Editorial BoardThe Los Angeles TimesJune 16th, 2016The “maximum family grant” discouraged women on welfare from having more children.
First Human Test of CRISPR Proposedby Antonio RegaladoMIT Technology ReviewJune 16th, 2016The proposed cancer treatment is an immune therapy in which a patient’s own blood cells will be removed and genetically altered.
Promising gene therapies pose million-dollar conundrumby Erika Check HaydenNature NewsJune 15th, 2016Economists, investors and medical insurers can’t figure out how to pay for gene therapy treatments.
Gene drive debate must include voices from Africa, elsewhereby Richard Nchabi KamwiSTATJune 15th, 2016The conversations have been missing the perspectives of representatives from malaria-affected countries, largely in South and Central America, Africa, and southern Asia.
Should We Sequence the DNA of Every Cancer Patient?by Antonio RegaladoMIT Technology ReviewJune 14th, 2016A startup plans to give free genetic tests to 100,000 cancer patients in order to steer them to drug companies.
"Safe" call? My thoughts on the latest mitochondrial replacement paper by Ted MorrowTed's BlogJune 14th, 2016The reaction from many has been upbeat, but my reading of the paper is different. Despite all the warnings about mitonuclear mismatching, it is apparently glossed over by scientists and science communicators alike."
Myriad Genetics Refuses To Accept That People Have A Right To Access Their Own DNA Sequencesby Glyn MoodyTech DirtJune 13th, 2016Despite major court rulings against gene patents, Myriad still refuses to release information from its huge DNA database built over years of sequencing patients' BRCA genes.
House votes to expand compensation for eugenics victims by Colin CampbellThe News & ObserverJune 13th, 2016The North Carolina House voted to expand a program to compensate people who were sterilized by the state government from 1929 to 1974.
DEA Wants Inside Your Medical Records to Fight the War on Drugsby Christopher MoraffThe Daily Beast June 9th, 2016The agency wants access to millions of private health files without a warrant, including those of two transgender men who are taking testosterone.
The National Academies’ Gene Drive study has ignored important and obvious issues by Jim ThomasThe Guardian June 9th, 2016Some important gaps in the study include an analysis of The report ducks questions about militarization, commercialization, and food security, but acknowledges there is "insufficient evidence to support the environmental release of gene drives."
Mitochondrial Replacement Hype Goes Nuclear Including by Wellcome Trustby Paul KnoepflerThe NicheJune 9th, 2016A new paper shows serious and difficult safety hurdles, but the UK media and some UK scientists are engaging in hype, claiming the exact opposite.
Interview: “Democratic deliberation” and bioethicsby Nelson Michael & Xavier SymonsBioEdgeJune 8th, 2016A member of the Presidential Commission for the Study of Bioethical Issues discusses the state of US bioethics.
Genetically engineered bugs to fight malaria and Zika? Not so fast, experts sayby Joel AchenbachThe Washington PostJune 8th, 2016The use of "gene drive" technologies threaten incalculable harm to ecosystems worldwide.
UK Researchers Now Say Three-Person Embryo Technique Doesn't Work; Propose New Methodby Jessica Cussins, Biopolitical Times guest contributorJune 8th, 2016New research shows the mitochondrial manipulation technique recently legalized in the UK faces major unknowns.
Unheard Publics in the Human Genome Editing Policy Debateby Elliot HosmanJune 8th, 2016The socially dangerous prospect of using genome editing tools for human reproduction underlies the need for caution in modifying embryos in basic research.
FDA chief aims to recruit 100 million Americans for precision medicine researchby Meghana KeshavanSTAT NewsJune 7th, 2016President Obama's Precision Medicine Initiative set a goal of recruiting a million volunteers to hand over their genetic and health data. The new head of FDA thinks that’s far too modest.
Biden unveils launch of major, open-access database to advance cancer researchby Laurie McGinleyThe Washington PostJune 6th, 2016The Vice President says the Genomic Data Commons will encourage collaboration among scientists, and will protect patient privacy.
Big Biotech is here — and it’s starting to look a lot like Big Pharma by Meghana KeshavanSTAT NewsJune 6th, 2016The market characteristics and goals of biotech companies align increasingly with those of pharmaceutical companies.
Swiss back genetic testing of embryos (again)by Celia LuterbacherSwiss InfoJune 5th, 2016Testing embryos can prevent transmission of serious genetic diseases, but also threatens discrimination against people with disabilities and a "slippery slope toward eugenics."
A 'family spat' spills out in public, as scientists debate effort to build a human genome by Andrew JosephSTAT NewsJune 4th, 2016Although it’s not a goal of the project, brewing up a complete synthetic human genome could lead, in theory, to the formation of an actual person, sans parents.
25 Scientists Just Made A $1 Billion Pitch To Build A Human Genome From Scratchby Nidhi SubbaramanBuzzFeedJune 2nd, 2016Drew Endy and Laurie Zoloth argue the project fails to ask a basic question: “Is developing capacities to synthesize human genomes a good idea?”
Scientists Announce HGP-Write, Project to Synthesize the Human Genomeby Andrew PollackThe New York TimesJune 2nd, 2016Synthesizing a human genome "immediately raise[s] numerous ethical and philosophical red flags," NIH director Francis Collins said.
Scientists Say They Hope To Create A Human Genome In The Labciting CGS' Marcy Darnovskyby Rob SteinNPRJune 2nd, 2016"The worry is that we're going to be synthesizing entire optimized human genomes...to produce synthetic human beings that they see as improved models," said Marcy Darnovsky.
California's StemCells, Inc., Flatlines; A Look at the Implicationsby David JensenCalifornia Stem Cell ReportJune 1st, 2016The company's sudden shutdown surprised and shocked some, but it also demonstrated the level of risk in stem cell research.
On Cyborgs and Gene Editing: Lessons from Orphan Blackby Jessica CussinsBiopolitical Times guest contributorJune 1st, 2016The television show takes a cue from science fiction author Donna Haraway and engages the dangers of human genetic modification.
Genes Are Overratedby Nathaniel ComfortThe AtlanticJune 1st, 2016The discovery of DNA wasn’t predestined, nor does it dictate our destiny—and current ideas about it may die.
Mayo Clinic lands $142 million from NIH to build precision medicine biobankby Bernie MonegainHealthcare IT NewsMay 31st, 2016Mayo Clinic will provide infrastructure to store, analyze, and host data as part of a program that aims to enroll one million people to boost President Obama’s Precision Medicine Initiative.
Finally allowed 2nd child, older Chinese parents turn to IVFby Louise WattUS News & World ReportMay 29th, 2016China's decision to allow all married couples to have two children is driving a surge in demand for fertility treatment among older women.
Opioids: Can a Genetic Test Identify an Addict in the Making?by Kristina FioreMedPage TodayMay 29th, 2016Two companies engage in "laboratory developed tests" to determine the role of genetics in addiction.
British scientist can genetically modify human embryos, ethics committee saysby Lydia WillgressThe Telegraph [UK]May 27th, 2016Following HFEA approval in February, a local ethics committee approves Kathy Niakan's program to CRISPR human embryos for basic research.
How should we pay for gene therapy?by Aaron Carroll (The Incidental Economist)Academy Health BlogMay 27th, 2016Unless pricing is regulated, gene therapies will likely be too expensive for most people to afford.
What It Means To Be Human Is Changing Thanks To Gene Editingby Joe Matthews (Zócalo Public Square)Huffington PostMay 27th, 2016“We might be splitting in class between those who can afford to manage our children eugenically and those who cannot.”
Netherlands gives green light for growing human embryos by Agence France-PresseThe GuardianMay 27th, 2016The Dutch government sanctions "limited research" to help infertile couples and to tackle hereditary or congenital diseases.
How Gene Testing Forced Me to Reveal My Private Health Informationby Jody AllardViceMay 27th, 2016Genetic testing can yield inconclusive results and undermine people's privacy and access to life, disability, and long-term care insurance.
As an industry giant invests in science fairs, we all invest (for better or worse) in biotechby Carl ZimmerSTATMay 26th, 2016School science fairs have evolved into sites of biotech and biomedical sponsorship and cultivation.
Ethical Questions Loom Over Efforts to Make a Human Genome from Scratchby Antonio RegaladoMIT Technology ReviewMay 25th, 2016Printing genomes on demand could mean custom-built organisms, difficult ethical questions, and profits for a handful of companies.
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